Selected publications by ECEN members 2021
A. Clinical Ethics Support (CES) cases in which ethics support
Magelssen M, Karlsen H. Clinical ethics committees in nursing homes: what good can they do? Analysis of a single case consultation. Accepted for publication in Nursing Ethics (2021)
Spranzi M. Situations de soins appelant un ‘travail de l’éthique’ [Clinical situations calling for ethical work]. Médecine palliative. 19 : 343-348( 2020)
Spranzi M, Le Bon C, Meuris C. Les ‘conflits de territorialité’ en gériatrie: les enjeux éthiques [Territorial conflicts in geriatric care : ethical questions]. Ethique et santé. 16 : 111-119 (2019)
Fournier V, Belghiti E, Brunet L, Spranzi M. Controversies surrounding WANH in NICU in France. Medicine, Healthcare and Philosophy. 20,3: 365-371 (2017)
Magelssen M, Miljeteig I, Pedersen R, Førde R. “Roles and responsibilities of clinical ethics committees in priority setting”. BMC Medical Ethics 18: 68 (2017)
B. Methods/structures for CES (e.g. Moral case deliberation, consultations, or committees)
S. Aleksandrova-Yankulovska Clinical ethics consultation through moral case deliberation and balint groups in support of general practice. General Mеdicine, 2020, 22 (5): 50-57. http://cml.mu-sofia.bg/CML/Obsta_Medicina/page316.html
Aleksandrova-Yankulovska S Application of METAP methodology for clinical ethics consultation in end-of-life care in Bulgaria. Clinical Ethics. 2020; 15(4): 204-212, https://doi.org/10.1177/1477750920930372
Fournier V, Bretonnière S, Spranzi M. Empirical research in clinical bioethics: The ‘Committed researcher’ approach. Bioethics. 34,7: 719-726 (2020)
Hartman L, Metselaar S, Widdershoven G, Molewijk B. Developing a clinical ethics support tool based on moral case deliberations: a pragmatic hermeneutic approach. Bioethics, https://doi.org/10.1111/bioe.12617 (2019)
Neitzke G: Ethikberatung auf der Intensivstation: die „Klinisch Orientierte Beratungsmethode“. <Ethics Consultation on the ICU: The “Clinically Oriented Method of Counselling”>. Dtsch Med Wochenschr 143: 27-34 (2018). (DOI 10.1055/s-0042-109255)
Neitzke G, Burchardi H, Duttge G et al.: Limits of the appropriateness of intensive care. Policy statement of the German Interdisciplinary Association of Intensive Care and Emergency Medicine (DIVI). Med Klin Intensivmed Notfmed 114:46-52 (2018). (DOI 10.1007/s00063-018-0514-y)
Spranzi M. Professionalizing the practice of clinical ethics consultation: Problems and perspectives. Bioethica Forum. 9,2: 31-33 (2016)
Fournier V, Brunet L, Foureur N, Spranzi M. The ‘commitment model’ for clinical ethics consultations : society’s involvement in the solution of individual cases. The Journal of Clinical Ethics. 26,4: 286-296 (2015)
Neitzke G: Ethikberatung und Ethikkomitees als Instrumente der Entscheidungsunterstützung. <Ethics Consultation and Ethics Committees as a Tool for Decision-Making-Support>. In: Marckmann G (Ed): Praxisbuch Ethik in der Medizin. MWV: Berlin 2015 pp.23-33
Bartholdson C, Pergert P, & Helgesson G. Procedures for clinical ethics case reflections: an example from childhood cancer care. Clinical Ethics 9,2–3:87–95 (2014) doi: 10.1177/1477750914546758
Molewijk B, Lucassen, A. Clinical Ethics Committee case 14: How should we transfer a euthanasia request between general practice and a hospital setting? Clinical Ethics, 6, p. 58-63 (2011)
Molewijk B, Kleinlugtenbelt D, Widdershoven G. The role of emotions in moral case deliberation. Theory, practice and methodology. Bioethics. Sep;25(7):383-93. DOI: 10.1111/j.1467-8519.2011.01914.x (2011)
Dörries A, Boitte P, Borovecki A, Cobbaut JP, Reiter-Theil S, Slowther A: Institutional Challenges for Clinical Ethics Committees. HEC (Health Care Ethics Committees) Forum 23:193-205 (2011)
C. Implementation and organizational structure of CES
Magelssen M, Karlsen H, Pedersen R, Thoresen L. Implementing clinical ethics committees as a complex intervention: presentation of a feasibility study in community care. BMC Medical Ethics 21: 82 (2020)
Hartman L, Inguaggiato G, Widdershoven G, Wensing-Kruger A, Molewijk B. Theory and practice of integrative clinical ethics support: a joint experience within gender affirmative care. BMC Medical Ethics, 21, Article number: 79, https://doi.org/10.1186/s12910-020-00520-3 (2020)
Magelssen M, Gjerberg E, Pedersen R, Førde R, Lillemoen L. The Norwegian national project for ethics support in community health and care services. BMC Medical Ethics 17: 70 (2016)
Weidema F, Van Dartel H, Molewijk B. Working towards implementing moral case deliberation in mental healthcare. Ongoing dialogue and shared ownership as strategy. Clinical Ethics, Vol. 11(2–3) 54–62 (2016)
Dörries A, Simon A, Marckmann G. Ethikberatung im Krankenhaus: Sachstand und kritischer Ausblick. (Clinical ethics support in hospitals: critical appraisal and future prospects) Ethik Med 27:249-253 (2015)
Dörries A, Neitzke G, Simon A, Vollmann J (Eds). Klinische Ethikberatung. Ein Praxisbuch für Krankenhäuser und Einrichtungen der Altenpflege. <Clinical Ethics Consultation: A Guidebook for Hospitals and Nursing Homes>. Kohlhammer, Stuttgart 2010, 2nd revised edition
Dörries A, Hespe-Jungesblut K. Die Implementierung klinischer Ethikberatung in Deutschland. Ergebnisse einer bundesweiten Umfrage bei Krankenhäusern. (Implementation of clinical ethics support in Germany. A nationwide survey in hospitals) Ethik Med 19:148-156 (2007)
D. Training related to CES
Dörries A, Simon A, Vollmann J, Neitzke G: The impact of an ethics training programme on the success of clinical ethics services. Clin Ethics 9,1:36-44 (2014)
Dörries A, Simon A, Neitzke G, Vollmann J: Implementing clinical ethics in German hospitals: content, didactics and evaluation of a nationwide postgraduate training programme. J Med Ethics 36,12:721-726 (2010)
Dörries A, Neitzke G, Simon A, Vollmann J (eds.) Klinische Ethikberatung. Ein Praxisbuch. (Clinical ethics support. A practical handbook) Kohlhammer, Stuttgart, 2. ergänzte und erweiterte Auflage, 2010
Dörries A, Neitzke G, Vollmann J, Simon A: Qualifzierungsprogramm Hannover “Ethikberatung im Krankenhaus” – Konzeption und Ausblick. (Postgraduate Training Programme Hannover “Clinical Ethics Support” – concept and prospects) In: Vollmann J, Schildmann J, Simon A (eds.): Klinische Ethik. Campus, Frankfurt/New York 2009 pp. 125-138
E. Theory of CES
Spranzi M. Le travail de l’éthique : décision médicale et intuitions morales [The ethical work : medical decisions and moral intuitions]. Bruxelles : Mardaga (2018)
Magelssen M, Pedersen R, Førde R. Four Roles of Ethical Theory in Clinical Ethics Consultation. American Journal of Bioethics 16,9:26–33 (2016)
Coors M, Dörries A: Ethisches Urteilen in moderierten Fallbesprechungen. Eine Interpretation von Leitfäden für ethische Fallbesprechungen.
(Ethical judgements in moderated case deliberation. An interpretation of guidelines for ethics case consultation) In: Rauprich O, Jox R, Marckmann G (Hrsg.) Vom Konflikt zur Lösung. Ethische Entscheidungswege in der Biomedizin. Mentis, Münster, 2016 pp. 189-203.
Widdershoven G, Molewijk B. Philosophical Foundations of Clinical Ethics: A Hermeneutic Perspective. In: Schildmann, Gordon, Vollmann (eds.), Clinical Ethics Consultation. Theories and Methods, Implementation, Evaluation. Ashgate, p.37-51 (2010)
Neitzke G: Confidentiality, secrecy, and privacy in ethics consultation. HEC Forum 19,4:293-302 (2007)
F. CES Evaluation Research
Bartholdson C, af Sandeberg M, Molewijk B & Pergert P. Does participation in ethics discussions have in impact on ethics decision making? A cross-sectional study among healthcare professionals in paediatric oncology. European Journal of Oncology Nursing (2021)
Weiner C, Pergert P, Molewijk B, Castor A & Bartholdson C. Perceptions of important outcomes of ethics case reflection rounds: a qualitative study among healthcare professionals in childhood cancer care. BMC Medical Ethics 22,1:27 (2021) doi: 10.1186/s12910-021-00597-4.
Magelssen M, Pedersen R, Miljeteig I, Ervik H, Førde R. Importance of systematic deliberation and stakeholder presence: a national study of clinical ethics committees. Journal of Medical Ethics 46,2:66-70 (2020)
Snoo-Trimp J, Vet R, Widdershoven G, Molewijk B, Svantesson M. Moral Competence, Moral Teamwork and Moral Action – The European Moral Case Deliberation. Outcomes (Euro-MCD) Instrument 2.0 and its revision process. BMC Medical Ethics, 21:53. DOI: https://doi.org/10.21203/rs.3.rs-15948/v3
Haltaufderheide J, Nadolny S, Gysels M, Bausewein C, Vollmann J, Schildmann J. Outcomes of clinical ethics support near the end of life: A systematic review. Nurs Ethics 27,3:838-854 (2020)
Schildmann J, Nadolny S, Haltaufderheide J, Gysels M, Vollmann J, Bausewein C. Ethical case interventions for adult patients (Review). Cochrane Database Syst Rev 7,7:CD012636 (2019)
Schildmann J, Nadolny S, Haltaufderheide J, Gysels M, Vollmann J, Bausewein C. Do we understand the intervention? What complex intervention research can teach us for the evaluation of clinical ethics support services (CESS). BMC Med Ethics 20,1:48 (2019)
Gather J, Kaufmann S, Otte I, Juckel G, Schildmann J, Vollmann J. Entwicklungsstand von klinischer Ethikberatung in der Psychiatrie. Ergebnisse einer Umfrage unter psychiatrischen Akutkrankenhäusern und Maßregelvollzugskliniken. Psychiatr Prax 46,2:90-96 (2019)
Bartholdson C, Molewijk B, Lützén K, Blomgren K &Pergert P.Ethics case reflection sessions: Enablers and barriers. Nursing Ethics 25,2:199-211 (2018) doi: 10.1177/0969733017693471
Wäscher S, Salloch S, Ritter P, Vollmann J, Schildmann J. Methodological Reflections on the Contribution of Qualitative Research to the Evaluation of Clinical Ethics Support Services. Bioethics 31,4:237-245 (2017)
Haltaufderheide J, Mertz M, Vollmann J, Schildmann J. Do Not Try To Run Before You Can Walk: Empirical and Meta-Ethical Presuppositions of Using Ethical Theory in Clinical Ethics Consultation. Am J Bioeth 16,9:51-53 (2016)
Bartholdson C, Lützén K, Blomgren K & Pergert P. Clarifying perspectives: Ethics case reflection sessions in childhood cancer care. Nursing Ethics 23,4:421-31 (2016) doi: 10.1177/0969733015570511
Aleksandrova-Yankulovska, S. Clinical ethical consultation – attitudes for introduction, training in ethical analysis and application of decision-making methodology in clinical practice. Dissertation for the award of the scientific degree “Doctor of Science”. Pleven, 2015. https://ras.nacid.bg/dissertation-preview/28564
Schildmann J, Molewijk B, Benaroyo L, Forde R, Neitzke G. Evaluation of Clinical Ethics Support Services and its normativity. J Med Ethics 39,11:681-685 (2013)
Neitzke G, Riedel A, Dinges S, Fahr U, May AT: Empfehlungen zur Evaluation von Ethikberatung in Einrichtungen des Gesundheitswesens. <Recommendations for the Evaluation of Ethics Consultation in Healthcare Institutions>. Ethik Med 25,2:149-156 (2013)
G. Patient/family participation in CES
H. Quality criteria of CES
Hartman L, Widdershoven G, Van Baarle E, Molewijk B. Conceptualizing and Fostering the Quality of CES through a Dutch National Network on CES (NEON). HEC Forum (2021). https://doi.org/10.1007/s10730-020-09432-6
Widdershoven G, Molewijk B, Metselaar S. Peer review and beyond. Towards a dialogical approach of quality of ethics support. In: Finder S.G. & Bliton M.J. (eds), Peer Review, Peer Education and Modeling in the Practice of Clinical Ethics Consultation: The Zadeh Project. Springer, p. 193-203. https://www.springer.com/gp/book/9783319909530 (2018)
Neitzke G, Riedel A, Brombacher L, Heinemann W, Herrmann B: Empfehlungen zur Erstellung von Ethik-Leitlinien in Einrichtungen des Gesundheitswesens. AG „Ethikberatung im Gesundheitswesen“ in der Akademie für Ethik in der Medizin e.V. (AEM). <Recommendations for Establishing Ethics-Guidelines in Healthcare Institutions>. Ethik Med 27,3:241-248 (2015)
Magelssen M, Pedersen R, Førde R. Sources of bias in clinical ethics case deliberation. Journal of Medical Ethics 40:678-682 (2014)
I. Other, CES related publications
Grosek Š, Kučan R, Grošelj J, Oražem M, Grošelj U, Erčulj V, Lajovic J, Borovečki A, Ivac B. The first nationwide study on facing and solving ethical dilemmas among healthcare professionals in Slovenia. PLoS One 15 , 7: 1-20 (2020)
Špoljar D, Ćurković M, Gastmans C, Gordijn B, Vrkić D, Jozepović A, Vuletić S, Tonković D, Borovečki A. Ethical content of expert recommendations for end-of-life decision-making in intensive care units: A systematic review. Journal of critical care 58: 10-19 (2020)
Marckmann G, Neitzke G, Schildmann J, Michalsen A, Dutzmann J, Hartog C, Jöbges S, Knochel K, Michels G, Pin M, Riessen R, Rogge A, Taupitz J, Janssens U. Decisions on the allocation of intensive care resources in the context of the COVID-19 pandemic: Clinical and ethical recommendations of DIVI, DGINA, DGAI, DGIIN, DGNI, DGP, DGP and AEM. Med Klin Intensivmed Notfmed 115,6:477-485 (2020)
af Sandeberg M, Bartholdson C & Pergert P. Important situations that capture moral distress in paediatric oncology. BMC Med Ethics 21,1:6 (2020) doi: 10.1186/s12910-020-0447-x
Bentwich ME, Mashiach-Eizenberg M, Borovečki A, Simonstein F. Reprogenetics, reproductive risks and cultural awareness: what may we learn from Israeli and Croatian medical students? BMC Medcial Ethics 20, 20: 85, 11 (2019)
Ćurković M, Borovečki A. The use of placebo in schizophrenia relapse prevention studies: scientific or ethical debate? Acta psychiatrica Scandinavica 140, 4: 386-387 (2019)
Puc J, Obadić P, Erčulj V, Borovečki A, Grosek Š. A cross-sectional study among healthcare and non-healthcare students in Slovenia and Croatia about do-not resuscitate decision-making. Zdravtsveno varstvo 58, 3; 139-147 (2019)
Pergert P, Bartholdson C & af Sandeberg M. The ethical climate in paediatric oncology – A national cross-sectional survey of health-care personnel. Psycho-Oncology 28,4:735-741 (2019) doi:10.1002/pon.5009
Pergert P, Bartholdson C, Blomgren K & af Sandeberg M. Moral distress in paediatric oncology: Contributing factors and group differences. Nursing Ethics 26,7-8:2351-2363 (2019) doi: 10.1177/0969733018809806
Spranzi M. Le travail de l’éthique : décision médicale et intuitions morales [The ethical work : medical decisions and moral intuitions]. Bruxelles : Mardaga (2018)
Spranzi M. Humanity and ‘ordinary abuse’: learning from hospital patients’ complaints. Perspectives in Biology and Medicine. 61,2: 264–278 (2018)
Pergert P, Bartholdson C, Wenemark M, Lützén K & af Sandeberg M. Translating and culturally adapting the shortened version of the Hospital Ethical Climate Survey (HECS-S) – retaining or modifying validated instruments. BMC Medical Ethics 19,1:35 (2018) doi:10.1186/s12910-018-0274-5
Borovečki A, Babić-Bosanac S. Discourse, ethics, public health, abortion, and conscientious objection in Croatia . Croatian Medical Journal 58; 4; 316-321 (2017)
Vučemilo L, Milošević M, Dodig D, Grabušić B, Đapić B, Borovečki A. The quality of informed consent in Croatia-a cross-sectional study and instrument development. Patient education and counseling 99, 3; 436-442 (2016)
Spranzi M. When patients’ values challenge professional integrity. Perspectives in Biology and Medicine.59,3: 326-336 (2016)
Spranzi M, Fournier V. The near-failure of advance directives: why they should not be abandoned altogether, but their role radically reconsidered. Medicine, Health Care and Philosophy. 19(4): 563-568 (2016)
Spranzi M. Professionalizing the practice of clinical ethics consultation: Problems and perspectives. Bioethica Forum. 9,2: 31-33 (2016)
Borovečki A, Einarsdottir J, O’Mathuna D, Pospieszna P, Stern OM, Oliva Teles N. 20 years of the ICRC Code of Conduct for Disaster Relief: what do we need to improve?. Lancet 385, 9976: 1391 (2015)
Vučemilo L, Borovečki A. Readability and Content Assessment of Informed Consent Forms for Medical Procedures in Croatia. PLOS One 10, 9:e0138017 (2015)
Александрова-Янкуловска С. Клинична етична консултация, София: Български кардиологичен институт; 2015. 169 стр. [Aleksandrova-Yankulovska S. Clinical Ethics Consultation. Sofia. Bulgaria: Bulgarian Cardiological Institute; 2015, pp.169] https://philosophy-bioethics.eu/biblioteka/klinitchna-etitchna-konsultatsiya-silviya-aleksandrova-yankulovska/
Dörries A: A matter of justice: Building trust among hospital managers and physicians. In: Wolf R, Issa T (Hrsg.) International Business Ethics and Growth Opportunities IGI Global book series „Advances in Business Strategy and Competitive Advantage (ABSCA)“ Hershey PA, USA, 2015 pp. 24-41
Schildmann J, Gordon J, Vollmann J (Eds). Clinical Ethics Consultation: –Theories and Methods, Implementation, Evaluation. Ashgate 2010
Aleksandrova, S. Experience in Ethical Decision-making and Attitude of Regional Hospital Physicians Towards Ethics Consultation. In: Clinical Ethics Consultation: Theories & methods – implementation – evaluation. J. Schildmann, J.S. Gordon and J. Vollmann (Eds.). England, Ashgate, 2010, pp. 175-187
Aleksandrova, S. Survey on the Experience in Ethical Decision-making and Attitude of Pleven University Hospital Physicians Towards Ethics Consultation. – Medicine, Health Care and Philosophy. A European Journal, 2008, vol.11, №1, pp. 35-42
Dörries A: Mixed feelings – physicians’ concerns about clinical ethics committees in Germany. HEC (Health Care Ethics Committees) Forum 15:245-257 (2003)